Data Use Agreement:

I request access to data from the Harvard Aging Brain Study (HABS) for the purpose of scientific investigation, teaching, or the planning of clinical research studies; and agree to the following terms:

I will receive access to de-identified data and will not attempt to establish the identity of, or attempt to contact any of the HABS subjects.  I will not attempt to make direct contact with HABS PIs or staff concerning the specific results of individual subjects. I will not further disclose these data beyond the uses outlined in this Agreement and my data use application below.

I will ensure that Investigators who utilize HABS data use appropriate administrative, physical, and technical safeguards to prevent use or disclosure of the data other than as provided for by this Agreement.

I will require anyone on my team who utilizes these data, or anyone with whom I share these data to comply with this data use Agreement, and to acknowledge use of the Harvard Aging Brain Study (P01AG036694) in any publications, presentations, or grant applications.

I will comply with any rules and regulations imposed by my institution and its institutional review board in requesting these data.

If I generate manuscripts, peer reviewed publications, or grant applications using data from HABS, in order to accurately acknowledge data gathering by HABS personnel, I agree to include language in the methods section of my manuscripts which is similar to the example language in the following paragraph. Depending upon the length and focus of the article, it may be appropriate to include more or less than the example below, however inclusion of some variation of the language shown below including the HABS website (http://nmr.mgh.harvard.edu/lab/harvardagingbrain) and primary funding source (NIH-P01AG036694) is mandatory.

Example language for citing HABS data: Data used in the preparation of this article were obtained from the Harvard Aging Brain Study (HABS - P01AG036694; http://nmr.mgh.harvard.edu/lab/harvardagingbrain). The HABS study was launched in 2010 and is led by principal investigators Reisa A. Sperling MD and Keith A. Johnson MD at Massachusetts General Hospital/Harvard Medical School in Boston, MA. 

Finally, because "preliminary data" will be made available, in the event that I download data from the HABS database for the purposes of analysis and future publication in the form of abstracts and/or publications, I will note the release version and date of the downloaded data.

By submitting the data request form below I am agreeing to abide by the terms of this data use Agreement

 

Your request will be e-mailed to the data administators for review and approval.  Generally you can expect to hear back within one week.

HABS data curation is overseen by Dr. Aaron P. Schultz (aschultz at nmr dot mgh dot Harvard dot edu) at the Martinos Center for Biomedical Imaging, Massachusetts General Hospital, Harvard Medical School, Boston, MA.

 

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